Applying Qualitative Research to Develop a Guide for Parents of Newborns With Hypoxic-Ischemic Encephalopathy
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Título: | Applying Qualitative Research to Develop a Guide for Parents of Newborns With Hypoxic-Ischemic Encephalopathy |
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Autor/es: | Herranz-Rubia, Nuria | Violant, Verónica | Balaguer, Albert | Noreña-Peña, Ana |
Grupo/s de investigación o GITE: | Enfermería y Cultura de los Cuidados (EYCC) | Grupo de Investigación en Alimentación y Nutrición (ALINUT) |
Centro, Departamento o Servicio: | Universidad de Alicante. Departamento de Enfermería |
Palabras clave: | Hypoxic-ischemic encephalopathy | Qualitative research | Parents’ guide | Infant newborn | Researcher reflexivity | Therapeutic hypothermia | Parent education | Practice guideline |
Área/s de conocimiento: | Enfermería |
Fecha de publicación: | 7-may-2020 |
Editor: | SAGE Publications |
Cita bibliográfica: | International Journal of Qualitative Methods. 2020, 19: 1-12. doi:10.1177/1609406920923426 |
Resumen: | Moderate-to-severe hypoxic-ischemic encephalopathy (HIE) is a significant cause of neonatal mortality and permanent disability in surviving newborns. Therapeutic hypothermia (TH) is the only effective intervention to reduce these outcomes. Being a parent of these babies is a traumatic and strenuous event. To address these difficulties, parents need information and support. The aim of this article is to describe a qualitative methodological process followed to develop a guide for parents of a newborn with HIE receiving TH as an addendum to clinical practice guidelines. The guide based on the experience of parents of newborns with HIE is presented as 16 meaningful questions and a glossary. It provides information to parents about HIE, treatment and care, future outcomes, and coping strategies. The final version, in Spanish and English, has a didactic format with simple wording, parents’ verbatim queries, and illustrations made expressly for the guide. Furthermore, we think showing the methodological process we followed to develop the guide, detailing the difficulties that arose in doing so, and making the reflexivity of the researchers explicit may provide support for other teams undertaking similar projects. Likewise, this article illustrates in a practical way how the perspective of family can be incorporated into clinical practice guidelines. |
Patrocinador/es: | Parents’ guide was part of the Spanish National Health System Clinical Practice Guideline on perinatal hypoxic-ischemic encephalopathy. Funding was received for the development of it from the Institute of Health and the Health Quality and Assessment Agency of Catalonia. It has been funded by the Spanish Ministry of Health, Social Services, and Equality (PIC-108-13). |
URI: | http://hdl.handle.net/10045/106810 |
ISSN: | 1609-4069 |
DOI: | 10.1177/1609406920923426 |
Idioma: | eng |
Tipo: | info:eu-repo/semantics/article |
Derechos: | Creative Commons Non Commercial CC BY-NC: This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 License (https://creativecommons.org/licenses/by-nc/4.0/) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access pages (https://us.sagepub.com/en-us/nam/open-access-at-sage). |
Revisión científica: | si |
Versión del editor: | https://doi.org/10.1177/1609406920923426 |
Aparece en las colecciones: | INV - ALINUT - Artículos de Revistas INV - EYCC - Artículos de Revistas |
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Herranz-Rubia_etal_2020_IntJQualitativeMethods.pdf | 504,23 kB | Adobe PDF | Abrir Vista previa | |
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