Impact of Organ Donation in Spanish Families: Phenomenological Approach Through Relatives' Lived Experiences

Abstract

Introduction and Purpose. This study explores the family experience when they are told that their recently deceased relative is in a potential position for organ donation, as well as the connotations that develop from that situation and how those nuances have lasted since then for family members. In Spain, and especially in Valencian region (where this study took place), one of the most productive counties for organ donation nationwide, the family interview is considered to be one of the most important tools that transplant coordinators can use to improve and succeed through the process of a potential organ donation. Methodology and Data Analysis. This is a qualitative study based on a phenomenological approach using Giorgi's method for data analysis. Members of 11 families who donated their deceased relatives' organs in La Fe Hospital, Valencia, Spain, from 2009 to 2011, participated through in-depth interviews after signing informed consent agreements. Discussion. Experiences described have shown how the relatives' overview has been affected by the situation in a way that is very different from the professional staff's view of reality. The difference in perspectives creates a barrier which can make the professional team less effective in understanding family interests to create a helpful and successful relationship for organ donation. Understanding the experiences of the families involved can help healthcare providers to conduct a more supportive family interview when the topic is organ donation.