Level of Burden and Health-Related Quality of Life in Caregivers of Palliative Care Patients
Por favor, use este identificador para citar o enlazar este ítem:
http://hdl.handle.net/10045/100135
Título: | Level of Burden and Health-Related Quality of Life in Caregivers of Palliative Care Patients |
---|---|
Autor/es: | Perpiñá-Galvañ, Juana | Orts-Beneito, Núria | Fernández-Alcántara, Manuel | Garcia-Sanjuan, Sofia | García-Caro, M. Paz | Cabañero-Martínez, María José |
Grupo/s de investigación o GITE: | Person-centred Care and Health Outcomes Innovation / Atención centrada en la persona e innovación en resultados de salud (PCC-HOI) | Psicología Aplicada a la Salud y Comportamiento Humano (PSYBHE) | Calidad de Vida, Bienestar Psicológico y Salud |
Centro, Departamento o Servicio: | Universidad de Alicante. Departamento de Enfermería | Universidad de Alicante. Departamento de Psicología de la Salud |
Palabras clave: | Palliative care | Caregiver | Burden | Anxiety | Depression | Quality of life |
Área/s de conocimiento: | Enfermería | Personalidad, Evaluación y Tratamiento Psicológico |
Fecha de publicación: | 29-nov-2019 |
Editor: | MDPI |
Cita bibliográfica: | Perpiñá-Galvañ J, Orts-Beneito N, Fernández-Alcántara M, García-Sanjuán S, García-Caro MP, Cabañero-Martínez MJ. Level of Burden and Health-Related Quality of Life in Caregivers of Palliative Care Patients. International Journal of Environmental Research and Public Health. 2019; 16(23):4806. doi:10.3390/ijerph16234806 |
Resumen: | The complexity of palliative care means that the emotional distress and burden that primary family caregivers suffer under can be particularly high. The objective of this study was to determine the level of burden endured by these primary family caregivers and to identify the variables that predict it in the caregiving relatives of people who require home-based palliative care. A descriptive-correlational cross-sectional study was conducted. Socio-demographic and clinical data were collected from caregivers through a self-administered questionnaire that included questions from the 12-Item Short Form Health Survey (SF-12), Zarit Caregiver Burden Interview (ZBI), Hospital Anxiety and Depression Scale (HADS), Brief Resilient Coping Scale (BRCS), Post Traumatic Growth Inventory (PTGI), and Fatigue Assessment Scale (FAS). A total of 77 caregivers participated; 66.2% were women, and the mean age was 61.5 years. Most (62.3%) were providing care to cancer patients. From among these data, the presence of anxiety as a clinical problem (48.1%), a high average fatigue score (FAS) of 23.0 (SD = 8.5), and the prevalence of intense overload (41.6%) stood out. We found statistically significant correlations between the variables of burden, fatigue, post-traumatic growth, anxiety, and depression, with the latter two being the main predictive variables of burden. In addition, caregiver burden was associated with a worsening of health. Identifying the factors that influence the appearance of overburden will allow the specific needs of careers to be assessed in order to offer them emotional support within the healthcare environment. |
Patrocinador/es: | This work was supported by grants UGP-18-255 from ISABIAL, PI17/00328 from the Carlos III Health Research Institute (ISCIII) belonging to the Spanish Ministry of Health, and by FEDER (“A way of making Europe”) project funds. |
URI: | http://hdl.handle.net/10045/100135 |
ISSN: | 1661-7827 (Print) | 1660-4601 (Online) |
DOI: | 10.3390/ijerph16234806 |
Idioma: | eng |
Tipo: | info:eu-repo/semantics/article |
Derechos: | © 2019 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (http://creativecommons.org/licenses/by/4.0/). |
Revisión científica: | si |
Versión del editor: | https://doi.org/10.3390/ijerph16234806 |
Aparece en las colecciones: | INV - PSYBHE - Artículos de Revistas INV - PCC-HOI - Artículos de Revistas INV - CV, BP Y S - Artículos de Revistas |
Archivos en este ítem:
Archivo | Descripción | Tamaño | Formato | |
---|---|---|---|---|
2019_Perpina-Galvan_etal_IntJEnvironResPublicHealth.pdf | 392,81 kB | Adobe PDF | Abrir Vista previa | |
Este ítem está licenciado bajo Licencia Creative Commons